Life Without Cheese

And Other Events Since July 18 (For Real This Time)

Happy Solar Eclipse Day! This is perfect for today - I'm talking about cheese and my path - perhaps my path of totality.

Moon made of cheese, Total Eclipse

Once again, it has been more than a month since I have posted. Ugh.

I have written pages and pages in my head but haven't been able to make myself sit down at the computer and type. I'll say this: pneumonia recovery is intense; pneumonia recovery with the stress of borrowing money to pay bills, meeting with attorneys to discuss lost job and severance docs and attempting to file for unemployment benefits (mostly an exercise in frustration) is painful and overwhelming.

I'm going to try to not make this a whine fest. I'm struggling with that lately. I'm letting everything get to me and feeling like a failure most days when most of my life I have been an upbeat, positive, glass half full, PollyAnna Glad kind of girl.

Since my last post, lots and lots of ups - improvement in my health. I still sleep 9-10 hours a night (this for a lifelong 5-6 hour a night sleeper sounds crazy) but I haven't been napping during the say along with that sleep. I want to most days but it's not required as it was for two months. I turned a corner about a week ago - more energy, more color in my face and the lung exerciser (you know the weird plastic contraption where you have to keep the ball between the lines while getting the plunger to rise) is much easier now and stairs no longer cause a panic.

I have run - well walk/run - 3 times this week. Two to three miles. I'm as sore as if I had run a marathon - not kidding. For my running friends, I walk downstairs sideways. At night, I am coughing more, but from what I have read, I will likely have mucus created by the pneumonia for several months. Mucus is the enemy of asthma so I'm watchful of my peak flow numbers and how my lungs are feeling. B is incredibly watchful - he is very observant of my breathing and my purple lip when it shows up and takes better care of me than I do of myself. 💓

Eating - here's the cheese part. I miss cheese. I'm pretty sure I will always miss cheese. Dr. Trudy says I will likely not be able to have it again - at least not without consequences. I don't think I will get over not having cheese. I likely will get over having wheat and gluten - though I Do miss sandwiches and beer. As of Aug. 13, I made it two months on the elimination diet and ultra supplements including my daily shake (sometimes twice a day). I was supposed to only have one month left before the great adding back experiment began but Dr. Trudy thinks because of the pneumonia-steroids-antibiotic gut set back, I should add another month before I start the experiment. The experiment involves eating three servings of a banned food in one day and waiting 72 hours for any effects. You might remember I have 34 banned foods. If each food only takes the three days (in that it doesn't make me so sick I need more time to get over it), that's 102 days.

There are worse things and I feel better. My gut feels better. My brain feels better. My body is on the mend. I imagine I would be feeling pretty tremendous by now had I not gotten pneumonia.

Other happenings

My other sailboat is dead. My wooden sailboat - named Sloopy but I had another name chosen. I won't share it because I never put her in the water and conducted the name changing ceremony. I had to destroy her and throw her away. I went to move the boat from one storage spot to another and she had rotted out. My friend Karl and I figured out how to keep her local by chopping her up and dropping her at the local recycling center. That was July 19.

Since then, I have seen some beautiful sunsets; taken a couple of boat rides; had a couple of meltdowns - over feeling like a failure, questioning my existence, upset I still have barrel belly; made some fun food, watched a lot of HGTV and FOOD; discovered a decently yummy but weird vegan gluten free mac and cheese; had some very nice chats, texts, prezzies, coffee visits, boat visits and words of encouragement from lovely friends; packed and unpacked from my missed trips; celebrated B's birthday; and found more restaurants and kind chefs to put up with all my eating restrictions.

I have figured out a new path or a new path to begin the path of totality - more on that later. I'm excited and nervous. It's not traditional. I can keep getting well and do it. I might need a part-time job for a bit to go along with it. That's enough information for now. 

I made quinoa and roasted tofu stuffed poblano peppers

Those are sun dried tomatoes

From Jeri

I made edame hummus stuffed endive with seared tuna and scallions

Healthy is a Feeling

(Written Wednesday, May 10, on a hotel notepad while enjoying a beautiful view).

To borrow from my yoga studio's post: Health is not a look; it's a feeling.

After a recent blog post, more than couple of people told me I should stop worrying about how I look and just be happy. For me - the two often are inseparable. When I'm feeling healthy, I can do all the things that make me look healthy inside and out. There's a glow that comes from the inside - from endorphins and joy and feeling right with the world. And there are the physical changes that come from being active.

So what I'm saying is I don't feel well or healthy. I won't repeat the myriad of ailments and symptoms I have previously discussed (whined about). But I will tell you about the hope I have after meeting with the functional medicine doctor I mentioned.

I like her - Dr. T I'll call her. She's my age, talks a mile a minute and seems to know her stuff.

She didn't start our first appointment with "so what's going on? Why are you here?" Instead, she had read and studied the questionnaire that took an hour and a half to complete. She had come up with a hypothesis about my health but had a few blanks to fill and some blood work to check (that's on hold until I return from a work trip).

Dr. T also took recent tests and studied those instead of making me repeat them - no need to add to the health-care bill - thank goodness!

After writing down the long list of meds I take each day - for asthma, for allergies, for SIBO - and perusing some nutrient levels, Dr. T. said: well no wonder you are complaining of weight gain!" She said the drug cocktail alone could cause me to pack on pounds but deficiencies in vitamins A, D, B12, B6, iron and protein have sent my body into panic mode - holding on to everything it can. Fight or Flight and my body is fighting.

But why? More to be determined there but basically my body likely isn't absorbing the nutrients I give it. Determining if it can absorb any at all is the next step when I return from Miami.

Meantime, Dr. T has me doing a few things to help me feel better: She wants me to wean off of the acide reflux medicine - you have to wean off these things or your body freaks out and over produces acid. It's miserable - I know firsthand how hard it is to get off the purple pill. A tablespoon of apple cider vinegar - Bragg's only - before I eat a meal will help to level out the acid and ensure that only good acid is being produced. Also licorice tablets in between meals instead of Xantac or  Tums if there are issues.

Cod liver oil is another addition with Vitamin A, D and some omega-3 fatty acids. This one is tough if only mentally. The name! But just once a day (admittedly I never got around to it yesterday - I was focused on a bad tummy) and lemon flavored. It just feels weird going down (yes, Victoria, Ty, Duane, Tiff - I KNOW what you are thinking!)

After Dr. T determines how deep the SIBO goes - as in can I absorb any nutrients or do we need to fix the leak first and then add in supplements - she wants to put me on vitamins B12, B6, Iron and pre- and probiotics.

I'm hopeful - a lot more so than I have been in at least a year. I'm also pretty annoyed at doctors who ignored or didn't see low-iron, protein and vitamin levels. Looks like my iron has been low for at leat a year. Seriously - I could have been feeling better?! Well, maybe not if I couldn't absorb anything then - but still! I actually found out my iron was low - despite feeling not so hot and this explains my fatigue - because I tried to give blood 3 times in the past 6 months but each time was turned away for low iron.

So I hope to get my life back - and I hope that on a day I spent an hour in the ladies room at work yesterday morning and then slept for hours after work - hardly able to open my eyes - like I had a flu - you know that feeling right? I had planned to go for a run and to a museum. I haven't made plans with two dear friends who live in Miami for fear I'll have to cancel.

I'm not asking to run marathons again - though I would like to - I'm just asking for most of my life back - not necessarily the extreme parts.

I made it upstairs and outside to write this and enjoy the view, a glass of wine and free hotel hour snacks (i.e. dinner). But then had to head back to bed. Around 8, I put my shoes on and went for a walk - determined not to let the day totally beat me.

B said today, "I give you a lot of credit for keeping up with the exercise with all this."

I told him it makes me a more decent human. :)

Free Hugs with your cocktail. I feel like that could happen anywhere - but I like it.

My blog in my chicken scratch - my view while writing

Interesting on my walk

No words

Everything and Me - Continual Works in Progress

A Daily Ritual?

I can't believe I haven't written since Jan. 20. I think about writing here ever day but it's been a rough couple of months of mental and physical self doubt and I didn't want to bring down the room.

I will try something new after today - I'll publish daily and see where that takes us. Did I just commit to publish my blog daily? Yikes.

So here's what is on my mind now and what comes to mind as I look back 3 months - I'm going to use my phone pics to guide me:

First thought is that perhaps this blog should be called Healing Everything: A Broken Woman's Attempt to Find Well Being.

Feels like an uphill battle many days.

Battling two chronic illnesses (SIBO and asthma if you recall) has taken a heavy toll on my body, my brain and my goals. I realized last week that I am really not at all myself and haven't been in probably a year - but it's been much worse since December (Jess and Chris moving) - I think I'm depressed. Struggle to smile genuinely and while I need people, I'm having a tough time seeing people. I don't look well. I don't feel well.

People ARE helping me - I'm letting them in - mostly. I have a tendency to shut out new people and sometimes even people I'm already close to - sometimes seeming like I don't care about THEM. I do I do. Just ask. I sometimes hide if I don't feel needed or if I don't feel like I have anything to contribute to the world.

Knowing it or not, people help.  B especially. He gets the 24-7 of it all (even when he's out of town). He handles it all like a champ. And I fight not to close up or be too sensitive or question our future or question us. I try - I'm not always good about it - especially in my head.

And I have had some lovely visits with my parents, my sisters (Michelle, Heather, Summer), niece Jenny, B's fun, nice, friendly family and baby MAEVE :)  Friends Jess and Chris and their Finley and Max; Janel! I hadn't seen her in 10 years - what a delight! Kris and her ever calm, intelligent, fun, funny self;  Ty, Erin, Tiff, Booker, Brandon and Dennis in Phoenix. I needed that trip and that visit - though I thought Tiff and Erin might smack me for continually calling myself fat. It's only kind of the number on the scale - it's mostly my out of shape-ness and feeling weak and unable to do anything about it.

The constant endless cycle of asthma, SIBO, the two leg surgeries. I can't exercise consistently, am almost always bloated - my face from the endless rounds of Prednisone looks like I'm storing food for the winter; and the rest of my body ( I have gained 34 pounds in less than a year). My legs and feet continue to puff up twice their size despite the vein surgeries, and my abdomen is flabby but also bloats and distends painfully and embarrassingly. I have lost almost all my muscle strength and all the tone. Clothes don't fit and I want to hide. I feel like I'm under there somewhere.

I am a strong woman and I want to exude that mentally and physically and be useful to others - it's tough right now. I'm barely useful to myself.

That's most days. Some days - some days - my head is on straight and I ignore all that and hang out with friends and family who don't judge me - at least not aloud - and meet new people and feel good. I feel successful in my work and able to be useful to family and friends. I like those days.

Dealing with this, my career, basic life calamities ($1,400 in car repairs, tax extension because I'm still waiting on former partner to get paperwork to me, the lawsuit against LMFH,  the dream of kitchen countertops, HOA dues, HOA special assessment, doctors' appointments, insurance paperwork) is stressful. I know someone else always has it worse. So much worse. I think of my friend Kim - whose 10-year-old son is fighting an awful battle - I cannot and would not compare. This is just my life at the moment. And mine is going to be OK - I'm still sure of that.

So what am I doing about this aside from whining? I have an appointment next week with a Functional Medicine doctor - using both Western and Eastern medicines, these doctors look at the whole body. I am convinced that all of my issues are related and there has to be a way out. Well, maybe not the asthma (fueled the past three months by red tide and smoke from nearby wildfires) but at least we can get it under better control by dealing with the other issues, I hope. My pulmonologist thinks these are likely related too.

This week, I'm finishing the latest 3 weeks of Prednisone and am on an antibiotic for SIBO symptoms, which always flair up during the steroids. I have been feeling better and managed to run last night - I say run - it IS the first time in months I actually logged something as a run - I won't be too hard on myself as to how slow it was. And I ran in the dark where no one but me could see the belly. I also made it to my happy place - beach and beach yoga on Monday night. There was much grunting and failed postures and belly pain - but it was oh so good. I made it to restorative and gentle yoga at the local studio too. So helpful. Such lovely people.

Now - back to what this blog is about. What have I accomplished?

According to my iPhone, the best of the last 3 months included rum, hanging closet curtains in the guest room, putting my Sunfish (no I haven't sailed it) on my parents' jet ski lift, sunsets, some crazy hair, a stuffed cat on my head during Wildcat basketball season, a pirate boat ride with B and family, baby Maeve, a hospital gown selfie, a beach day with Q, silliness with Janel, joy with Kris, staining and hanging trim in my living room (nail gun!), making Irish whiskey cake for B for St. Patrick's Day, a boat ride with family, Phoenix, deviled eggs for Easter, a Harley ride with Dad, a visit with Lisa (we don't get together near enough), saved Internet pictures of Kate and Franco's wedding, wine and dinner at my local hangout, clouds, Oscar's birthday and a flower-laden, polka-dot overall-wearing manatee mailbox.

That sounds about right. The video my phone put together of all that gave me a genuine smile and warmed heart.

So I'll stop there on that happy note. And write again tomorrow.

Catching Up

Sailboats to Illness to Grumpiness to Feeling Better

It has been 46 days since my last post (hey - that's a Phish song - I'm going to listen to it right now! You can too https://www.youtube.com/watch?v=r35Ius6JPS8 - I was at this show).

I can't believe it has been so long since my last entry. Well I can - a lot has happened - not a lot to my sailboats or to my condo but in life I guess and too many horrible things around the country and the world.

How about just the headlines, highlights and pictures? I considered a haiku but there are more than 17 syllables to tell.

ENTERPRISE DINGHY CURRENTLY NAMED SLOOPY BACK ON MARCO ISLAND
Thanks to Karl and at least the third towing ball I have purchased for this trailer.

"No Facebook"

Tarp was shredded when we picked her up. New one on now.

ENTERPRISE DINGHY TODAY HAS LIABILITY INSURANCE TO SATISFY 'THE CLUB'


A LITTLE LOVE LIGHTS UP A ROOM

This was Quite a Kyle adventure - there are extra holes you can't see and a few marks from a thrown screwdriver

ASTHMA FINALLY CALMS DOWN AFTER LONG RUN WITH STEROIDS, NEW INHALER

THIRD ANTIBIOTIC PUTS SIBO AT EASE; FOSTER STILL ON WEIRD EATING REGIMEN

FOSTER STARTS RUNNING AGAIN AFTER SIX WEEKS OF ILLNESSES


VISIT TO NEW YORK, NEW JERSEY FOR WORK FRIENDS IS INSPIRING

And many more not pictured: Maeve, Evan, Kip, Annabel, Elizabeth, Sarah D., Lawrence, Johnny, Charlie, Coco, Robin, Jackie, Carol Ann, Trisha, Meghan H., Phoebe, Lizzie, Jon, Allison, John, Sonali, Frank, Meghan G., Rizal, Melodie, Erin, Damon, Edith, Kathy, Liz, Saldene, Jasmine, Megan, Melissa, Nick, Nicholas, and I'm sure I'm missing others. We had lovely skies, good runs, yoga, good food, good talks, lots of laughs - and oh some work and training too.

SHELLY, JIM, JESSE, JOSEPH AND PATRICK VISIT MARCO ISLAND, FUN ENSUES

         












AFTER 2 1/2 WEEKS APART, B-FOSTER REUNITED - HAPPY HAPPY GOOD TIMES
(Missed him).

KEY WEST TRIP, FIRST TRIP TOGETHER PROVES SUCCESSFUL, IS EPIC FUN
(Pictures lost on old phone that needed replacing but refused to upload anything beforehand but fun boat ride there and back, beautiful hotel on the water, nice catch up with B).

FOSTER CONTRACTS KIDNEY INFECTION TO FOLLOW UP OTHER ILLNESSES

FOSTER ON CIPRO -  YOU KNOW, THAT ANTHRAX-KILLING DRUG?

FOSTER FEELING MUCH BETTER, WENT TO BEACH YOGA TODAY

FOSTER FEELING MUCH BETTER, MAY TRY A RUN TODAY, SEE FRIENDS, FISH

*In other good news, I'm working on a refinancing of my condo to try to sort the mess J helped create. (Send positive vibes and luck please).

*It's amazing what some essential oils, a few sun salutations, some big puffy beautiful sunrise clouds, a laugh with your favorite coffee shop owner, some purple flowers and a short walk will do to your mood. Or my mood anyway.

*It's amazing what a hug from your pulmonologist will do - no really, not in a creepy way - he cares and that's good when things in your lungs get scary.

*It's amazing what yoga can do to the mind, body, soul. From the people who are present, including me, to the sights and sounds, smells, smiles and words of wisdom and kindness. I am always humbly reminded to Think, speak and love myself and others lovingly and truthfully. Thank you, Debby.

Note to self:

More running, more yoga, more music, more fun, more laughing, more family, more positive energy, more coloring, more dancing, more sunsets and sunrises


More memories like these:

Kate and Franco bought a house since this! Yay them!

   

  







AND

Run like an antelope out of control! https://www.youtube.com/watch?v=N6A-cJr4Kpw
(and yes, I was at this show too).